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51 Websites, Videos, and Other Resources on Noonan Syndrome

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Noonan syndrome has been called “one of the most common rare syndromes you’ve never heard of.” It is a genetic disorder that causes abnormal development of multiple parts of the body. Part of a group of related conditions called the RASopathies, it is estimated to be found in 1:1,000 to 1:2,500 persons worldwide. The following resources can help you learn more about Noonan syndrome and related disorders, and find support for your family if you’re parenting a child diagnosed with Noonan syndrome. February is Noonan Syndrome Awareness Month, and February 23rd is Noonan Syndrome Awareness Day. Many with Noonan syndrome will have…


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